Writing About Gus

Fate and Gus in my studio

I wrote once about Gus having megaesophagus and haven’t written about it since.

Jon has written so well  about it on his blog many times since Gus was diagnosed.   He’s also done a ton of research and we’ve been trying different medications, food and feeding techniques.  Gus’ condition seems to change from day to day and we make the adjustments we think will help.

It’s a time of unknowing.

I haven’t written about it although  it’s altered the structure of my days and has been  on my mind and heart since we found out he has it.

The thing is, I still don’t feel like writing about it, I just don’t have it in me.  But I feel strange not mentioning it at all and just putting up pictures of Gus as if everything were normal.

Unlike Jon, who works things out by writing about them, I am often at a loss for words when I’m dealing with something that’s very emotional.

So if you want to know all that’s happening with Gus, you can read about it here on  Jon’s blog.

And I’ll get to writing about Gus when it feels right for me.



3 thoughts on “Writing About Gus

  1. My heart aches for all of you. Gus is so fortunate to have you, Jon and Dr. Fariello as his advocates. Hoping your little guy puts on some weight and feels better soon. Althea

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